People
Diane’s story: a long journey to a Primary Immunedeficiencies diagnosis
From plasma-derived therapies to ultra-rare treatments
Projects
Affianco – A joint narrative of Primary Immunedeficiencies
People
Living with Factor X Deficiency: Maya’s story through her mother’s eyes
People
Living with Factor X Deficiency: Vicky’s story of awareness and strong family ties
People
Veronica: an eclectic spirit, always in motion, living with hemophilia. The first chapter of Rare but Real.
People
Diane’s story: a long journey to a Primary Immunedeficiencies diagnosis
People
Cristina’s story – Disentangling the diagnosis
People
Aza’s story of motherhood
People
Advocating for equal access to health care – Hemophilia in Mexico
Awareness
Hepatitis B and Mother-To-Child Transmission: turning awareness into action in maternal health
Awareness
GBS and CIDP: giving voice to awareness, from lived experience to care
Awareness
Looking beyond labels: understanding the connection between Primary and Secondary Immunodeficiencies
Awareness
Where AI meets Primary Immunodeficiencies
Awareness
Immune Deficiency Foundation and the power of connection in improving care for people with PI in the US
Awareness
AIP, patient advocacy and a shared commitment to better PID care in Italy
Awareness
Secondary Immunodeficiencies and the challenge of early recognition
Awareness
ISTH Congress 2025
Awareness
Breaking taboos and closing gaps: women’s health in focus
Awareness
ESID and GPM 2024: amplifying the voices of the PID community
Projects
“Home With You”: a collective story about the people who make care possible
Projects
Side by Side 2.0: the power of mutual support
Projects
Affianco – A joint narrative of Primary Immunedeficiencies
Projects
“Home With You”: a collective story about the people who make care possible
Projects
Side by Side 2.0: the power of mutual support
Projects
Affianco – A joint narrative of Primary Immunedeficiencies